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Advance Care Planning
Communicating About Matters of Life and Death
by Leah Rogne, Ph.D. (Editor); Susana McCune, MA, CT (Editor)
Paperback Book (408 Pages)
August 2013
While advance directives hold a great deal of promise for ensuring self-determination and quality of life near its end, the majority of Americans face life-threatening illness without having completed effective advance care planning.. This volume recounts the history of advance directives, chronicling the evolution of an approach that initially focused on completing forms, to one that now emphasizes more comprehensive strategies for facilitating conversations about end-of-life care and planning for dying and death. It provides helpful strategies for initiating and guiding discussions among providers, patients, and their loved ones, easing the burdens of uncertainty, and improving the efficacy of surrogate decision making near the end of life.

Scholars and practitioners from a variety of disciplines provide a well-rounded view of the history and challenges of advance directives. Authors include palliative care physicians, nurses, social workers, grief counselors, educators, lawyers, psychologists, sociologists, and medical ethicists. The book shares successful strategies on how effective advance care planning can provide smoother transitions at the end of life and ensure better quality of living before death. It incorporates effective multidisciplinary, relationship-based models of advance care planning along with multidisciplinary perspectives to help caregiving professionals initiate conversations and disseminate relevant information to patients and their loved ones and advocates. Case studies illustrate the importance of, challenges with, and prospects for advance directives and advance care planning. The book addresses common barriers to advance care planning and offers ways to overcome them, as well as detailing public health, legal, and comprehensive community planning approaches to change how our current American society deals with dying, death, and end-of-life care.
Key Features:
•Introduces a multidisciplinary, pragmatic approach to advance care planning
•Addresses strategies to reform advance care planning
•Presents case studies illustrating the importance, benefits, and challenges of advance directives
•Features successful initiatives in advance care planning and new directions that shift community practice related to dying, death, and end-of-life care.
•Includes the contributions of physicians, grief counselors, medical ethicists, social workers, psychologists, medical ethicists, lawyers, nurses, educators, and others


Chapter 1: History and Overview of Advance Directives

Chapter 2: Barriers to Effective Advance Care Planning: A Sociological Perspective

Chapter 3: Advance Care Planning: Focus on Communication and Care Planning Rather Than on Building the Perfect Form

Chapter 4: Advance Medical Care Planning: The Legal Environment

Chapter 5: Advance Care Planning: Considerations for Practice with Older Adults

Chapter 6: Advance Care Planning and the Problem of Overtreatment

Chapter 7: Facing Challenges, Inspiring Improvement, and Leading Change in End of Life Care


Chapter 8: Worlds of Connection: Applying an Interdisciplinary Relational Model to Advance Care To Communicating About End of Life

Chapter 9: Values, Beliefs and Perspectives in Communicating about Advance Care Planning

Chapter 10: Advance Directives and Patient-Family Decision Making, and the Conversations that Matter: Stories and Mobiles

Chapter 11: It Ain't Easy: Making Life and Death Decisions Before the Crisis

Chapter 12: Watch Over Me : Therapeutic Conversations in Advanced Dementia

Chapter 13: Advance Care Planning and Nursing Home Residents and Families: Lessons Inspired by TV Game Shows

PART IV: CHARTING A NEW PATH: Successful Initiatives and New Directions

Chapter 14: Respecting Choices : An Evidence-based Advance Care Planning Program with Proven Success and Replication

Chapter 15: It's a Conversation

Chapter 16: Take Charge Partnership "Just Talk(s) About It" A Model for Sustained, Grassroots Activism

Chapter 17: Passion, Persistence, and Pennies

Chapter 18: Advance Care Directives as a Public Health Issue

Chapter 19: Does the Nation's Survival Depend on a New End-of-Life Conversation?

Appendix: Resources
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